Annual Peace Coin Award -
2007
Congratulations to Phanit Chalevnrath!
For having the most improved chemistries within the last year. You are brilliant, keep it up!
Annual Peace Coin Award -
2006
Congratulations to Janet Rees!
For having the most improved chemistries within the last year. She is also to be applauded for learning to place her own access needles. You're Amazing Sister!
2005
Congratulations to Daleene Dautel!
For having the most improved chemistries within the last year. You go girl!
RESOURCE DIRECTORY
BOOKS, PAMPHLETS, MAGAZINES & WEB SITES
Alternatives for the Health-Conscious Individual
P.O. Box 61010
Potomac, MD 20859 -1010
To sign up for this news letter 1-800-219-8591
E-mail: mailbox@drdavidwilliams.com
Dialysis and Transplantation Magazine
Dining Out With Confidence
Learn to dine out on a kidney diet
Request a copy from the NKF 1-800-622-9010
Family Focus Magazine
An excellent publication from the National Kidney Foundation
Read current or back issues at www.readfamilyfocus.org
Fit for Life
Detailed information on separating food groups
Authors: Harvey and Marilyn Diamond
Food-Your Miracle Medicine
How Food Can Prevent and Cure Over 100 Symptoms and Problems
Based On More Than 10,000 Scientific Studies
Author: Jean Carper
Health Wisdom for Women Dr. Christiane Northrup
P.O. Box 199
Yarmouth, ME 04096
To subscribe: 1-800-804-0935
E-mail: drnorthrup@phillips.com
Man’s Search for Meaning
One of my favorite books. It gives meaning to life.
Dr. Viktor E. Frankl
Naeser Laser Home Treatment Program for the Hand
An Alternative Treatment for Carpal Tunnel Syndrome
and Repetitive Strain Injury
Authors: Margaret A. Naeser, Ph.D., Lic. Acc.,
Carol K. Hahn, M.D., and Barbara E. Lieberman, O.T.R./L.
www.acupuncture.com/conditions/ctslaseracu.htm
Nephrology News & Issues
Balancing Economics & Quality in Renal Care
Prescription for Nutritional Healing
A Practical A-to-Z Reference to Drug-Free Remedies Using Vitamins, Minerals,
Herbs and Food Supplements
Authors: Phyllis A. Balch, CNC & James F. Balch, M.D.
Go here to learn about possible side effects of the drugs you use.
Sexuality and Chronic Kidney Disease
By the NKF 1-800-749-2257
The 72 NAMES OF GOD
Technology for the Soul
A spiritual book of infinite value
Author: Yehuda Berg
UTHealth Magazine
What Your Doctor May Not Tell You about Menopause
Author: John R. Lee, MD.
When Your Kidneys Fail
The easy-to-use resource for people with kidney disease
Author: Mickie Hall Faris, M.P.H., M.B.A.
Catalogs & Products
Biotène Dry Mouth Antibacterial Enzyme Toothpaste
and Bioène Mouthwash
Daniel’s Croup & Cold Ointment
For the relief of croup, colds, minor aches, and pains
Allen Drug
4 North Main Street
Malad City, Idaho 83252
E-mail: allendrug@atcnet.net
Lhasa OMS, INC.
For the TENS Unit and ITO laser light pen
230 Libbey Parkway
Weymouth, MA 02189
(800) 722-8775
Mrs. Dash
Recipes, on-line ordering and monthly newsletter
Penzeys Spices
Some of the best spices you can find
The Vitamin Shoppe
4700 Westside Avenue
P.O. Box 1041
North Bergen, NJ 07047-9808
1-800-223-1216 (for a free catalogue)
Vitamin World
1-800-228-4533
Patient & Professional Organizations
American Association of Kidney Patients
It provides renal-specific information on patient education, newsletters and conventions that assist patients in becoming active participants in their health care.
1-800-749-2257
E-mail: aakpnat@aol.com
American Association of Oriental Medicine
610-266-1433
433 Front Street
Catasauqua, PA 18032
E-mail: AAOMI@aol.com
American Diabetes Association
Organization providing research, information and advocacy. Their mission is to prevent and cure diabetes, and to improve the lives of those affected by the disease, the leading cause of kidney failure.
1701 North Beauregard Street
Alexandria, VA 22314
E-mail: membership@diabetes.org
American Kidney Fund
This health organization provides information on financial assistance programs, lifestyle ideas and kidney disease facts. Supported by educational programs, clinical research and community service projects.
1-800-638-8299
E-mail: helpline@akfinc.org
American Nephrology Nurses’ Association
A professional organization that strives to develop high standards of patient care, educate practitioners, stimulate research, disseminate new ideas in the field and promote communication and cooperation.
856-256-2320
E-mail: anna@ajj.com
American Society of Hypertension
This provides a forum for information on research and clinical developments regarding high blood pressure, the second leading cause of kidney failure and related cardiovascular diseases.
212-481-9810
American Society of Nephrology
Founded in 1967 to enhance and assist the study and practice of nephrology and to meet the professional and continuing educational needs of its members.
202-659-0599
www.asn-online.org
American Society of Pediatric Nephrology
Founded in 1969 to promote optimal care for children with renal disease and to disseminate advances in the clinical practice and basic science of pediatric nephrology.
317-278-0854
www.aspneph.com
California Dialysis Council
An organization devoted to representing the state’s dialysis patients and clinics regarding legislative, regulatory and other issues.
928-717-1156
www.caldialysis.org
Centers for Medicare & Medicaid Services (CMS)
This is the federal agency which administers Medicare, Medicaid and the State Children’s Health Insurance Program (SCHIP) in the US.
www.cms.org
CMS Dialysis Facility Compare
The Centers for Medicare & Medicaid Services has developed this site to better educate people about dialysis facilities. Includes information such as addresses, shifts, and Medicare certification. Also, provides information on quality outcome measures.
www.medicare.gov/Dialysis/Home.asp
Dialysis Finder™
For traveling this is a great web site! Type in where you’re going and it helps you locate a dialysis center to visit while on vacation. Helpful for patientsand travel coordinators.
Disability Information
A comprehensive resource to provide people with disabilities with the information needed quickly and easily. Such as: education, employment. health, housing, transportation, etc.
www.disabilityinfo.gov
ESRD NETWORKS ( there are 18)
These networks provide a mechanism to ensure the most efficient use of Medicare dollars for dialysis treatment and kidney transplantation by monitoring quality of care indicators and maintaining data. Functions are administered at the regional level, providing direct and immediate access from the treatment provider to CMS through the networks.
304 794-2536
www.esrdnetworks.org
Global Dialysis
A resource for dialysis patients who want to travel nationally and internationally.
www.globaldialysis.com
Health Teaching
A website for professionals to obtain educational materials to use in field of nephrology. Created by a nephrology nurse, the teaching tools include laminated cards and posters to aid in training the client and staff in different programs.
Hypertension, Dialysis and Clinical Nephrology
Primarily for physicians and nurses who treat people with renal disease. It provides information on renal disorders, their treatment, hypertension, dialysis and nephrology topics.
International Society for Peritoneal Dialysis (ISPD)
This Canadian based group was formed to promote the clinical application and scientific investigation of PD for treating renal failure. Membership is open to medical, scientific, nursing, nutritional, social work, and business professionals.
905 875 2456
E-mail: multimed@inforamp.net
K/DOQI
The Kidney Disease Outcomes Quality Initiative is the NKF’s dialysis site, containing clinical practice guidelines and detailed information about dialysis methods,
800 622-9010
Kidney Directions
A patient-focused website provided by Baxter Healthcare that stresses individual circumstances and needs. It has informative sections on the basics of kidney disease and different treatment options.
www.kidneydirections.com
Kidney & Urology Foundation of America (KUFA)
Dedicated to helping the more than 70 million Americans who suffer from the debilitating effects of kidney, urologic, and related diseases. They provide research for new and better treatments. Filled with patient assistance, emergency grants, scholarships and awards information.
www.kidneyurology.org/index.php
The Medical Education Institute, Inc.
414 D’Onofrio Drive, Suite 200
Madison, WI 53719
Phone: 608-833-8033
www.HomeDialysis.org
Information on PD & Home Hemodialysis
www.LifeOptions.org
Dedicated to helping people live long and live well with kidney disease
www.KidneySchool.org
A free, on-line, interactive kidney learning center in sixteen 30-minute modules. Be sure to see my personal favorite on Alternative Health Care. Ther’s lively content, photos, graphics, patient quotes. It creates a Personal Action Plan that you can print out and use for goal-setting.
MedlinePlus®
Good health information from the world’s largest medical library – The National Library of Medicine. Information is authoritative and updated. There are lists of physicians, hospitals, a medical encyclopedia, dictionary, extensive info on prescription and nonprescription drugs and links to clinical trials.
National Association for Nephrology Technicians/Technologists (NANT)
A nonprofit organization to improve the quality of care in the dialysis industry, promote education, recognition through certification and licensing, job security and employment opportunities for nephrology technicians.
877 607-NANT
National Kidney Foundation of New York
30 East 33rd Street
New York, NY 10016
1-800-622-9010 Call to obtain the number for your state’s NKF
E-mail: info@kidney.org
National Renal Administrators Association (NRAA)
A national association representing dialysis managers and administrators.
703 437-4377
NeedyMeds, Inc.
A list of programs to assist those who can’t afford to purchase the medications they need. Explains how to get help from patient assistance programs that are provided by many different pharmaceutical manufacturers.
Nephrogenic Diabetes Insipidus Foundation
A community website for patients , their families, researchers, physicians and other healthcare providers. Information about NDI including: nutritional guidelines, journal articles, facts, statistics, etc.
888 376-6343
Nephrology Channel
NeC is an educational and community based website for patients, family members and healthcare professionals to learn more about co9nditions related to kidney disease. The site features an MDLocator, which can help find a nephrologist near you and teach you how to choose a physician. It has a good interactive features such as live chat, alternative treatment and nephrology forums.
Nephron Information Center
Developed by Stev Fadem, MD., a nephrologist practicing in Texas. This center is a comprehensive, well-organized renal-specific site.
NephroWorld
A free portal to keep nephrology professionals and patients up-to-date with the latest nephrology news. Top nephrology news is taken from hundreds of medical websites and categorized into more than 200 subspecialties. In addition to this, there’s a museum and a dialysis directory with more than 8,000 centers all over the world.
PEPP
Patients Educating Patients & Professionals
This is a professional, speaker program in which patients with Kidney Disease provide Power Point presentations to educate those with CKD, their loved ones, family, friends, & health care givers. I am also a speaker for this organization.
1-818-543-0896
Renal Support Network
An incredible organization developed by Lori Hartwell which provides:
• Quarterly newsletter Live & Give
• Annual Health, Happiness,& Hope Conference
• weKAN Kidney Advocacy Network
• PEPP (Patients Educating Patients & Professionals)
1311 N. Maryland Ave.
Glendale, CA 91207
E-mail: info@RSNhope.org
National Kidney Foundation of Southern California
1-800-747-5527
National Kidney Foundation of Utah
1-800-869-5277
Polycystic Kidney Research Foundation
4901 Main Street - Suite 200
Kansas City, MO 64112-2634
1-800-PKD-CURE
e-mail: pkdcure@pkrfoundation.org
24 Hour Fitness
USDA Database Search
Look up the amounts of sodium, potassium,
phosphorus and much more on countless foods
Wei Laboratories
Wonderful Chinese herbal remedies for fractures, bursitis, carpal tunnel etc.
Endorsements
“Dialysis is a difficult path but not impossible. Roanne’s self-help
book is a sound and empowering set of guidelines on how to live a
happy and fulfilled life, even while on dialysis.”
Paula Julander, RN, MSN, Utah State Senator
“Ancient medical science informed us that our minds and bodies are
one. Roanne Dale recognized the connection between the body and
the mind long before she needed dialysis. She is now ready to share
her experiences and keys to success in her book, DIALYSIS SUCCESS.
Modern medicine cannot just prescribe drugs and walk away from
you. It takes understanding your ailment, knowing how your
medications work, being aware of changes in your body, what to
eat and drink, and most of all, being in charge of ‘YOU’.”
Yasmen Simonian, PhD, CLS(NCA), MT(ASCP)
“The knowledge that Roanne is willing to share is immensely valuable
not only for dialysis, but for anyone with health challenges, interested
in living life fully with joy and a sense of well-being.”
Sidne Jones, MSN, OB/GYN, CNP
Peace Coin Award
When my older sister and I each gave our younger sister a kidney, all of us were given a beautiful coin. It was my dad's way of saying we were his heroes. I have established a Peace Coin Award in honor of him. Once a year I give a peace coin to the person with the most improved chemistries. The recipient will be chosen from either Central Valley Dialysis or Utah Dialysis. It is never too late to take charge of your life, participate in your own health care, and in that way find Peace and Happiness.
FIND A PASSION FOR LIFE
livingtheheartlife.com is a new way of being in the world and a new way of feeling. It is a way of relating to yourself and your world that will transform your life of stress and strain, of lack and disease, of loneliness and despair to a life of purpose, passion, and prosperity! An inspirational book by Steven and Cynthia Wand.
myindie.org
Music by Tom Betts
tombetts.com
Website by Fine Artist Tom Betts.
